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정우정 ( Joung Woo-Joung ) - 서울대학교 간호과학연구소
이명선 ( Yi Myung-Sun ) - 서울대학교 간호대학
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Abstract
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Purpose: The purpose of this study was to develop a deeper understanding of the experience of mothers caring for children with epilepsy.
Methods:Data were collected through individual in-depth interviews and observation from 12 mothers of children with epilepsy. Data were collectedfrom December, 2014 to February, 2015 and analyzed using van Manen’s hermeneutic phenomenological methodology to identify essentialthemes of their experience.
Results: The essential themes that fit into the context of the 4-existential grounds of time, body, other people, andspace were: Lived time-ongoing influence of the past, living in insecure present, fearful future with no answer; Lived body-bonded body, burnedout state; Lived other-burden but also support, shrunken down; Lived space-narrowed range of activity, widened horizon.
Conclusion: The findingsin this study show in-depth understanding of the hardships of mothers who are caring for children with epilepsy. The beauty and greatnessof these mothers are revealed through the analysis of various phenomenological materials such as literary and artistic work reflecting socio-culturalcontext, as well as vivid care experiences of mothers of children with epilepsy. This will be helpful in increasing understanding of the natureof caregivers’ experience for medical professionals dealing with patients and caregivers. Also it helps to improve the understanding of the diseaseamong the general public, followed by a more warming and caring attitude towards patients and family members. Finally, it will enhance psychologicalwell-being and overall quality of life of the epileptic children and their families.
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KeyWords
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돌봄, 뇌전증, 어머니, 질적 연구
Caring, Epilepsy, Mothers, Qualitative research
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원문 및 링크아웃 정보
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등재저널 정보
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